Thursday, February 21, 2008

Where does time go?

I cannot believe we're approaching March so quickly! We've had a bout of sickness, going to weekly cast visits, birthdays, etc. It seems like I've been really busy, but I don't think I've been as busy as I've felt. G is out of his casts. For now. I am not sure what the course of action is going to be today because his left ankle is swollen and is hot. I'm worried he may have a stress fracture since he was casted for so long and his bones are probably quite brittle. He doesn't seem to be experiencing any pain, but that wouldn't be unusual since he has less sensation.

We have a brain/spine/scoliosis MRI coming up next Thursday. We'll be checking to see if his syrinx has remained stable or gotten larger. Tethered cord is also a concern, so that'll be addressed. Hopefully, the brain MRI shows things to be stable there.

That being said, we've made it a year without a shunt revision!!! February 14 marked the day. It's odd, but it just felt different to make it past that day and realize, yes, we made it an entire year. We really, truly did. We've had our scares/concerns throughout the year, but that scar has had a year to heal. :) I now know and understand (well, kinda) the nature of the shunt, and I'm aware there may be another revision (or more) in the future, but we'll take any small victory we can.

Interestingly enough, one of my major concerns when he was going through all these revisions was how it would it affect him developmentally. We were told recently he wasn't showing any developmental delays, was quite age appropriate other than physically, and he probably won't be eligible for school therapy once he's out of the birth to three program.

G is almost two-and-a-half. Where does time go???

4 comments:

Catherine said...

Nice to hear your voice!

barnyardmama said...

That is insanely wonderful! No developmental delays. You can't beat that. Thanks for sharing the link of your son's photos.

You know, I've seen pictures of those top of the head shunts, and I just can't stand them. It seems like they are just out in the open waiting ot be knocked that way.

I've heard that once a child makes it past age two he starts having fewer revisions. They aren't growing as rapidly and all that.

I poked all around your site and I love your attitude! Some "special" mommies get a little depressing, and I think it's real important to stay as positive as we can.

Rural Felicity said...

Thanks, Catherine! I've been peaking in on your page, and it's nice to hear yours, also. :)

Rural Felicity said...

Hi, barnyardmama! Thank you. I love your name, btw... :)

I will try and put up a post sometime soon of his shunt when placed at the top of his head. I never liked its appearance and I know even with hair, it would have been visible. His was also a very large valve compared to the one he has now.

When G had his revision last January, it presented itself with headbanging, and he smacked that thing so hard. :(

I enjoy reading your site. Charlie is so adorable!!